![]() ![]() Honest, intelligent, and deeply moving, The Boy in the Moon explores the value of a single human life.Ĭanadian writer Brown presents a moving and deeply felt account of his life with his son Walker, who is one of fewer than 300 people in the world who were born with CFC, cardiofaciocutaneous syndrome, an extremely rare genetic mutation that didn't even have a name until 1986. ![]() As Brown gradually lets go of his self-blame and hope for a cure, he learns to accept the Walker he loves, just as he is. In his journey, he offers an insightful critique of society's assumptions about the disabled, and he discovers a connected community of families living with this illness. At age thirteen, he is mentally and developmentally between one and three years old and will need constant care for the rest of his life.īrown travels the globe, meeting with genetic scientists and neurologists as well as parents, to solve the questions Walker's doctors can't answer. Ian Brown's son Walker is one of only about 300 people worldwide diagnosed with cardiofaciocutaneous (CFC) syndrome-an extremely rare genetic mutation that results in unusual facial appearance, the inability to speak, and a compulsion to hit himself constantly. Jane Bernstein, author of Loving Rachel and Rachel in the World ![]() "n intimate glimpse into the life of a family that cares around the clock for a disabled child, that gets so close to the love and despair, and the complex questions the life of such a child raises.It is a beautiful book, heartfelt and profound, warm and wise." ![]()
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